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face it positively

Our history

  • 1979 First Committee Meeting of families touched by Cleft
  • Sharyn Nicholson & Sue Neal produced the first Blue Book
  • 1983 we became an Incorporated Society with a constitution still used today.

About Us

We are an Incorporated Society 222784 which means we are here to represent and give voice to the experiences, views and opinions of our members, who are people who have been touched in some way by someone born with a cleft lip and/or palate.

By listening to what our members have to say we can then in turn shape the aims of the organisation to support and empower those members. This has led to valuable changes and insights over the years as we move forward, helping our members take personal responsibility for their challenges by giving them the knowledge to make effective decisions.

Today, as a result of that ongoing input and commitment, we can offer our members an even wider level of services and contacts. Because treatments and facilities are continuing to make advancements in the area of cleft lip and/or palate, having an organisation such as ours ensures everyone is kept up to date and never isolated.

If you would like a copy of the Cleft New Zealand Inc. Constitution, please e-mail:

Legal Status

We are an Incorporated Society 222784 and registered with the Charities Commission CC21700. This means that any financial contribution over $5 is tax deductable.