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Enrol for a Free Sign Language Class

Posted on Tuesday, April 2nd, 2013

Cleft New Zealand is excited to be offering, in conjunction with Deaf Aotearoa, a free sign language class during New Zealand Sign Language Week.

New Zealand Sign Language is one of New Zealand”s three official languages, alongside English and Maori, and is a very important method of communication for those in our communities who are deaf – including the deaf members of our own cleft community. We at Cleft New Zealand, believe it slotseeing.com important that this language is given the same respect and attention given to other languages and therefore are very pleased to be offering a one hour class to the hearing community which will cover the following:

  • Fingerspell the alphabet
  • Sign greetings
  • NZSL Grammar and Structure
  • Everyday words and phrases
The class will be taught by an interpreter from Deaf Aotearoa, and will be facilitated by Cleft New Zealand. Places are limited, please enrol below to secure your place now. Your place on the course is not confirmed until you receive an email confirmation from us with your ticket. Please bring this ticket with you on the day.
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Changes to Arm-Splint Pricing & Ordering

Posted on Monday, December 17th, 2012

Cleft New Zealand wishes to advise that the price of arm-splints is changing from Friday 21 December 2012. Please see below for changes to pricing.

For orders up to Friday 21 December 2012

Cleft Families – First pair from hospital $0.00, and then $12.50/pair

Cleft Units – $12.50/pair

Non-cleft Units – $12.50/each or $25.00/pair

For orders from Friday 21 December 2012

Cleft Families – First pair from hospital $0.00, then $18.00/pair

All Units – $9.00/each or $18.00/pair

In addition to this, we now have a new online ordering system for splints designed to simplify the ordering process for you and provide you with more payment options – to order splints now, please visit faceit.org.nz/shop.

These changes are being implemented to simplify o

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ur pricing structure, and also to reflect increased costs in the administration, manufacture and distribution of arm splints. In early 2013, we shall also be introducing a service to allow environmentally friendly recycling and disposal of used arm splints. Furthermore, due to an administration error, many splints sent between April 2012 to 31 October 2012 were not invoiced or billed for, a loss of hundreds of dollars for Cleft New Zealand. Cleft New Zealand is not looking to recoup this loss, but appreciate your understanding in the pricing changes. A friendly reminder, to ensure that all splint orders are to come from the department that is requesting them, we require this for statistical purposes.

If you have any queries regarding splint pricing and ordering changes, please contact .


Resignation of Ian Pallas

Posted on Monday, December 17th, 2012

It is with regret that I announce that the Board of Cleft New Zealand have received a letter of resignation from Ian Pallas, effective 30 November 2012, which we have accepted with a great deal of reluctance. Ian has been a loyal member of the Cleft New Zealand governance team for a number of years, assisting behind-the-scenes with many of our day to day operations and projects and was most recently involved in the capacity of Treasurer. Although usually working away quietly in the background, some of you may recall meeting Ian at the Wellington and Auckland Central roadshow days where his

presence was greatly appreciated.

We would like to take this opportunity to thank Ian for his contribution to the cleft community of New Zealand over the years and wish him all the very best for his future endeavours; you will be missed.

Kenny & Ian at the Roadshow Dinner, April 2012


Christmas 2012

Posted on Wednesday, November 21st, 2012

For those of you familiar with our services, you”ll be aware that we ordinarily host a Christmas party around this time of the year. Sadly, due to a number of unforeseen circumstances directly affecting our staff, there will not be a Christmas party on the scale seen in previous years in 2012. Whilst I and my colleagues deeply regret this, we still believe we have a lot to be proud of as an organisation in 2012 – as you will remember, in April, we undertook the first ever Cleft New Zealand roadshow, bringing our services to twelve different centres around New Zealand, and in August 2012, we had the Tough Guy challenge where we raised an impressive amount to kickstart our Outward Bound fund. We endeavour to continue to improve our services into 2013 and beyond, offering more new opportunities where we can.

Despite not being in a position to offer the usual Christmas celebrations, we are offering low key Christmas events in Auckland and Christchurch in December if sufficient numbers of you are interested. Please see below for details and how to express your interest.

Auckland – Sunday 2 December 20

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Time: 10am-12pm
Venue: Louise”s house or Cornwall Park
Event: Casual Xmas themed coffee group
RSVP: Louise – , email: , or freeTXT “CLEFT”, a space and your message to “234″, by 5pm Tuesday 27 November

Christchurch – Saturday 15 spielautomaten online spielen Online im Roxy Palace Deutschland Es gibt hunderte von verschiedenen slot machinespiele, um an unseremonline-casino zuversuchen. December 2012
Time: 12pm-3pm
Venue: Kenny”s house
Event: Christmas BBQ – bring a plate (of food, not an empty plate with the intention of filling it!)
RSVP: Kenny – , email: , or freeTXT “CLEFT”, a space and then your message to “234″, by 5pm Friday 7 December

Please Note: Both these events will require minimum numbers to run. The Christchurch event will be cancelled in the event of wet weather. Oh, and bring the family – just be sure to let us know how many people to expect!

Again, on behalf of Cleft New Zealand, I apologise for the non-running of the usual Christmas event in 2012, circumstances have been against us in the latter months of this year, but rest assured we anticipate offering some new and exciting stuff in 2013 – stay tuned!


World Smile Day – Friday 5 October

Posted on Tuesday, September 25th, 2012

World Smile Day is coming on Friday 5 October to raise awareness globally for Cleft Lip and Palate and to raise funds for Smile Train to continue their work to repair clefts in countries whose public health system is non-existent or not as developed as our own. And you can help donate US$10 to this cause without handing over a cent!

All you have to do is show the world your gorgeous smile! Here”s how it works:

1) Find a digital camera and take a photo of yourself smiling

2) Put it on your computer, and then email it to  with “World Smile Day” in the subject line. Please make sure your photo is under 5MB and the total email size is less than 25MB if you are sending multiple photos

3) After moderation by Cleft NZ staff, we will upload it to the Cleft NZ Twitter Page (

tNZ” target=”_blank”>www.twitter.com/CleftNZ) with the hashtag #SmileTrainWSD #CleftNewZealand

4) Famous Famiglia Pizzeria will donate US$10 to Smile Train for each photo uploaded

5) Go out with a big smile on your face on Friday 5 October knowing that you”ve helped make the world a better place for a child affected by cleft

6) Encourage your friends and family to come here and follow these steps – simples!

Every photo uploaded before 23:59 GMT on Fri 5 Oct (12:59 NZDT Sat 6 Oct) will attract a $10 donation to Smile Train. Also, this isn”t just limited to cleft smiles – your friends and family can send in photos of their smiles too – so everyone can help!

Send photos to  now!

Check out New Zealand”s video!


Changes to Facebook Pages

Posted on Wednesday, September 5th, 2012

Following an internal discussion and new statistical information received from Facebook, to serve the cleft community better, we have decided to make a couple of changes to our Facebook community pages. We previously had the following three pages:

  • Cleft NZ Kids and Teens (Designed for use by our youth members, although open to the public)
  • FaceIt: Cleft NZ Incorporated (Designed for use by members of the parent community only, members must be approved to join)
  • Cleft NZ Causes (Designed for anyone, open to the public)

However, we have found through information released to us from Facebook, that the actual demographics using each of the pages is quite a bit different to our initial intentions when we set up these pages a few years ago. Therefore, we have changed the name of one of our groups, and slightly altered the intended audiences to fit better with the actual audiences that are using all of our pages, and to maximise the opportunity to engage with everyone who shows an interest in our organisation - please see below for the new format.

  • Cleft New Zealand (Available for use by anyone with an interest in cleft in NZ, friends, family, youth, medical professionals, students, media etc. – open to the p

    ublic. Will also be our main avenue on Facebook for advertising Cleft NZ information and activities – accessible at )

  • FaceIt: Cleft NZ Incorporated (Available for use by members only, including the parent community, as well as those growing up or have grown up with a cleft. Not available to non-members or members who have a solely professional interest in cleft, members must be approved to join – accessible at )
  • Cleft NZ Causes (Available to anyone, open to the public – this page remains unchanged)

These changes will not affect any existing users of any of the pages. We take this opportunity to remind you that our Facebook community is an online community to share lived experience and does not take the place of professional advice. Cleft NZ cannot guarantee the validity of the information found there. If you need specific advice please contact your cleft team health professional. Please note that the views expressed there are those of our members and do not necessarily reflect the views or opinions of Cleft New Zealand unless otherwise stated.


Meet the rest of the Cleft NZ Dare Kenny Tough Guy Team!

Posted on Friday, July 20th, 2012

Here”s a bit of info on the people willing to get exhausted, filthy and carry Kenny if it came to it (which we”re sure it won”t) – all in the interests of supporting Cleft NZ to attain it”s goal of raising money towards our Outward Bound fund. Of this group only the Whiting-Ayrey”s are directly affected by Cleft Lip and Palate – the others just feel strongly about the cause and are looking forward to seeing Kenny transform from super-roadshow man to super tough guy. Please send the to family and friends, we need your help to make this happen. If by any chance you want to join this team and enter the event on 18th August in Rotorua let me know asap – the t-shirts are being printed as we write, courtesy of Lema Stewart at Embroidery Works – another great supporter of Dare Kenny.

Pete Whiting – Pete is father of 3 children: 3 year old Henry, who was born with CL&P, Ted, 8 years old and Mae, 5 years. Pete is a big ex-rugby player, so toughness and dirt are in his DNA. Pete is a Senior Principal at Landscape, Ecology and Planning firm Boffa Miskell Ltd.

Louise Ayrey – married to Pete Whiting, mother of Henry & co and currently a Wine Merchant and Cleft NZ Volunteer. Lou loves running and boot camp and completed the Tough Guy 6km circuit in 2011. 2012 will see her attempt


Hamish Mackie – loyal & supportive friend to the Whiting-Ayreys and always up for a challenge, Hamish has 3 kids of his own and is the founder and Co-Director (with his wife Julia) of Mackie Research Ltd – a firm specialising in human systems research and consultancy projects.

Yvonne O”Hagan-Cole – Tough Northern Irish spirit will hold this woman in good stead for this years Tough Guy – also going for the 12k course after completing the 6km last year with Louise, dressed as a Thunderbird! Yvonne is an extrememly stylish mother of three and works at Annah Stretton Matakana keeping other women as stylin” as she.

Marty O”Hagan-Cole – Marty is Yvonnes equally stylish husband and dad of their three girls. He”s a Principal Engineer for Water Asset Management at Opus International Consultants Limited but that won”t help him keep his “assets” dry come the Tough Guy challenge!

Myles Perry – Tall, lean and active, Myles” laid back demeanour hopefully masks the “Tough Guy” within. As Manager of Airline Resources at Air New Zealand we expect him to fly through….mmmmmm. His two children and lovely wife Jeanette will be there cheering the whole Cleft team come the 18th.

Want to join the team? Freephone .

More info on the Tough Guy challenge is available here


"Dare Kenny" – Tough Guy Challenge

Posted on Monday, July 2nd, 2012

Face It: Growing up with Cleft Lip and Palate can be tough, but we”re tougher!

The Cleft NZ Dare Kenny Tough Guy Challenge took place on Saturday 18 August in Rotorua – photos are now available at  or check out the video below!

Click on the photo to see the Dare Kenny Tough Guy Challenge Photo Album

Our 'tough guy' Kenny Ardouin at the roadshow in Napier, 9 April 2012

What was it all about?

Growing up with Cleft Lip and Palate isn”t easy, sometimes it can feel like a bit of an obstacle course with many different hurdles along the way, but with a bit of encouragement, support and general toughness, we manage to complete an obstacle course that would break many people at the first hurdle (a lot like the big balls on wipeout).

Speaking of obstacle courses, that brings us to our latest fundraiser – the Dare Kenny Tough Guy challenge. Despite being the nice guy that he is, I think it is fair to say, he isn”t exactly the toughest person to ever grace this planet physically, so what better way to take advantage of his good-will by challenging him (dragg

ing him kicking and screaming) to do the Tough Guy obstacle course to raise funds to develop a new Outward Bound programme for Cleft New Zealand.

What does the Tough Guy challenge involve?

The Tough Guy & Gal Challenge is a 6km physical assault course in Rotorua. The course includes water trails, net climb, crawl under barb wire obstacles, swamp crossings, Genie?en Sie die stellaren Casino-Attraktionen in Ihren Online-Glucks online casino spiele portal #1 – 777. native bush trail, wobbly water bridge, open paddock running, hurdles, wire rope bridge plus what the event organisers have described only as “a new surprise”. Kenny didn”t have to do the course alone though, he was joined by Cleft NZ”s Auckland Co-ordinator Louise, and a whole team of supporters. Meet the rest of the Tough Guy Challenge team here.

When was it?

Saturday 18th August 2012 at Hell”s Gate, Rotorua.

So, what exactly are you raising money for?

As we said, growing up with cleft lip and/or palate is tough, but we”re tougher and go on to achieve great things and not let anything hold us back. Outward Bound  is an amazing character-building endurance course, designed to push people to the limits and unleash their inner tough guy/girl. We would love to be able to provide this life-changing experience to members of our cleft community in New Zealand who are ready for a new challenge, and so we are fundraising with the vision to providing this unique opportunity in the future. More info on Outward Bound is available here.


Christchurch Info, Movie + Pizza Night – Tuesday 5 June

Posted on Tuesday, May 8th, 2012

Free food and a movie. Now that we”ve got your attention, there will be free food and a movie at the next Christchurch event on Tuesday 5 June!

So, what is it? It”s a night for people of all ages to come together, learn more about Cleft NZ, what we do and provide you with an opportunity to tell us what you would like to see from Cleft NZ in the future. It is designed for anybody in the Christchurch area with an interest in cleft – whether it be parents, kids, teens, adults, medical professionals, students or anyone else with an interest!

This event will be hosted by Cleft New Zealand”s South Island Co-ordinator, Kenny Ardouin who will introduce our guest speaker for the evening, Mr. R. Kaipa, a PhD student in the Department of Communication Disorders at the University of Canterbury, who will talk to us about his amazing experiences working with The Smile Train, the international organisation which provides free cleft surgery to children in countries less fortunate than our own (The Smile Train are the people behind the award winning “Smile Pinki” film screened on the recent roadshow). We are very privileged to have the opportunity to hear from Mr Kaipa before he heads to the States shortly, so please do come along to hear about his work, it promises to be very interesting and a real eye-opener for us all. Following this, Kenny will talk briefly about Cleft NZ”s operations in Christchurch and plans to get everything moving again over the next year (we have some exciting stuff coming up, you want to hear about it!), and then following this we will have some pizza and drinks (provided by Cleft NZ) and then will watch the family comedy Marley & Me to wrap up

the evening. Cleft NZ staff will be available on the night for you to talk to about any queries or ideas you may have.

When: Tuesday 5 June, 6:30pm (doors open at 6pm with the award winning Smile Pinki documentary screening from 6pm)

Where: North New Brighton War Memorial Community Centre, 93 Marine Parade, Christchurch (Downstairs)

Who for? Anyone with an interest in Cleft Lip and/or Palate – parents, kids, teenagers, adults, professionals and students are all welcome.

How much? This is a FREE event, although, donations are always welcome!

RSVP: Places are limited for this one, so if you would like to come, please email  ASAP to secure your place!

About our guest speaker, Ramesh Kaipa: http://www.cmds.canterbury.ac.nz/postgrads/kaipa.shtml

About the movie Marley & Me (check out the trailer below)
Genre: Comedy
Rating: PG

This event is a special treat for the city of Christchurch seeing as it”s been a tough time for us all lately, and we are really keen to resume our operations in Christchurch following the earthquakes. As a result, this latest Christchurch event is FREE! Spaces are limited though, so please RSVP by emailing ASAP to secure your place!


Cleft NZ 2012 AGM – Monday 28 May

Posted on Tuesday, May 8th, 2012

The Annual General Meeting of Cleft NZ Inc. will be held on Monday 28th May at 7.30pm, at St Matthew in the City, Cnr Hobson and Wellesley Streets, Auckland City.

Our main speaker for the evening will be Peter Fowler, Orthodontist from Christchurch. Peter is actively involved in a project to collect and examine data from Cleft Units around New Zealand, working towards establishing criteria for best practice in all aspects of Cleft Management in NZ.

Peter”s talk will be of interest to all Cleft paren

ts, families and supporters. Please take this opportunity to hear about important work being carried out for the benefit of everyone with a Cleft!

Kenny Ardouin will also update us on his work as South Island Co-ordinator, and a brief review of his recent successful road show.

Light refreshments will be served after the meeting. Parking is available off Hobson Street on the forecourt in front of, and alongside the church.

Please RSVP to for catering and seating purposes.