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Auckland Coffee Group – Tuesday 22 May

Posted on Monday, May 7th, 2012

Put this one in your diary, calendar, blackberry, iThing or personal assistant:

The next Auckland Coffee Group:

When: Tuesday May 22nd 10am – 12pm
Where: Humbug


32 Rua Road
Glen Eden

For more info, contact our Auckland Co-ordinator, Louise Ayrey on freephone .
Everyone’s welcome – hope to see you there!
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Cleft Dinner – Auckland, Saturday 12 May

Posted on Wednesday, April 25th, 2012

Ever wanted to meet some other adults affected by Cleft Lip and Palate and share your story?

Well this is your chance. One of our members is organising a dinner on Saturday 12th May in Ponsonby, Auckland.

Anybody is welcome to attend, particularly those cleft adults who want to meet other cleft adults and share their stories (because let”s Face It – we all have a story to tell!) Parents of cleft children are also very welcome to attend this event! Oh and feel free to bring partners and fr

iends along – the more the merrier!

What? Where? When?

Date: Saturday 12th May
Time: 7pm
Location: Ponsonby Bistro 222
Address: 222 Ponsonby Road
Ponsonby, Auckland 1011

Check out the venue and menu at www.bistro222.co.nz

If you would like to go, please RSVP by Wednesday 9 May to Laura Ash by emailing


Testimonies from the 2012 Roadshow

Posted on Wednesday, April 18th, 2012

What others had to say about the 2012 roadshow

Got some feedback about the roadshow? Email

“Hi Kenny, I attended the bullying talk yesterday in Christchurch. Congratulations on a great seminar! I was very impressed with the Cleft Roadshow and wish you all the best for your trip. Well done!” – Kate

“Huge congrats to Kenny and everyone else involved in the Roadshow! Wellington pulled out a stunning day! Kenny your passion and committment to the organisation and the cause is astounding! Keep up the great work!” – Jen

“Thanks for today…my wife & I appreciate the support & time given to this venture. A great initiative. It”s also great to have the “Face it” logo & what it means out there in the public domain for cleft awareness. Well done team & it was a pleasure to meet Kenny too.” – Marcus

“Awesome to meet you today, Riley & Adrienne :D

“Was great meeting you :)thanks for an awesome event. You are a credit to the cleft community kenny.” – Jessica

“Just been and visited the roadshow in Napier and wanted to say what a fantastic idea and well done to Kenny and everyone else who was involved in organising it and making it happen. Well done Cleft NZ :-)” – Joanne

“Thanks so much for today Kenny. You”re doing a remarkable job. For those of you further north, please make the effort to see Kenny, you”ll definitely get so much out of it. Thank you Kenny for educating people so that clefts really are just a normal part of our society, which in turn is going to help my Liv and everyone else in this group. And also Kenny, thought you”d find it funny that Liv was still

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going on and on before bed that you”re both special since you”re clefties and lefties!!!!” – Sophie

“ Was very cool seeing the truck in Hamilton and meeting you Kenny. Thanks so much for organising the event, legend!!!!!” – Anita

“It was great meeting you, and you are doing a great job. Still trying to get B to sign up to the youth page lolz I will keep bugging him heehee” – Rachel

“Thanks kenny it was great to meet you and awesome what you are doing for our cleft kids Find out if VIAGRA is right for you. around the country!!!!!! Have fun in Auckland!!!” – Anita

“The rain didn”t get in the way and the guys did a great job, great information, and mostly just nice to meet with you on your country tour on behalf of us – great job!! well done!” – Lorraine

“Great to meet you ever so briefly today Kenny. Hoping to catch up again before you head back south. :-)” – Kylie

“Kenny, it was a pleasure to spend the day with you on Saturday – and to meet new families and see older families again. Looking forward to helping with the next one!” – Louise

“Great to catch up with you Kenny and what an awesome effort you put into the road show. I think my 7 year old cleft kid summed it up on the way home – “Kenny was really nice to do that eh mum?” – Barbara

“It was a pleasure to meet you on Saturday. Thank you for taking the time to meet & connect with all the cleft kids. Tom doesn”t say much, but I know he got a lift from meeting you – a boy who looks like him. It was a relief, if that makes sense? We hope there will be more road shows. If so, Tom and our family would love to be involved x” – Kate and Tom

“Thanks for the feedback and well done.  it was great for the patients, community and our service.  your time and effort is much appreciated.” – Megan, CMDHB

“I went on Saturday to Cornwall Park and met Kenny and some other lovely people.  I filled in a membership form and they gave me the blue book… great to go along and meet them and have a bit of a chat.” – Jan

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Cleft NZ Roadshow

Posted on Tuesday, April 17th, 2012

The 2012 Cleft NZ Roadshow has now finished.

Huge thanks to everyone who came down, said hi and showed their support during the 2012 roadshow, it was fantastic to meet you all.

To view our photo gallery of the photos from the Cleft NZ Roadshow, please check us out on Facebook at

To view or listen to media articles surrounding the roadshow, please click here: https://faceit.org.nz/2012-roadshow-media-articles/

To see what others had to say about the roadshow, please click here: https://faceit.org.nz/testimonies-from-the-2012-roadshow/

2012 Roadshow Video

Here”s where we went

Monday 02 April: Christchurch 11am – 6pm (Christchurch Botanic Gardens, Car Park off Armagh St, Christchurch City Centre)

Wednesday 04 April: Nelson 9am – 5pm (Rutherford Park, Nelson City Centre)

Thursday 05 April: Picton 8am – 12pm (Lower High Street, Picton Town Centre)

Friday 06 April: Wellington 10am – 6pm (Te Papa Promenade on the Waterfront, access off Taranaki Street, Wellington City Centre)

Saturday 07 April: Palmerston North 12pm – 6pm (The Square, by the i-Site, Palmerston North Town Centre)

Monday 09 April: Napier 9am – 5:30pm (Paved area between Marine Parade and Herschell St by the statue opposite the Masonic Hotel)

Tuesday 10 April: Taupo 12pm – 5pm (Ferry Road Carpark, on the waterfront opposite Taupo Domain, Taupo Town Centre)

Wednesday 11 April: Tauranga 11am – 6pm (Bayfair Shopping Centre Carpark, Mount Maunganui, Tauranga)

Thursday 12 April: Hamilton 10am – 5pm (Hamilton Garden

s, Cobham Drive, Lake/Lawn area by Carpark 1)

Friday 13 April: Manukau 10am – 6pm (Manukau Super Clinic, Conference Centre Room 3, 901 Great South Road)

Saturday 14 April: Auckland Central 9am – 5:30pm (Cornwall Park, Manukau Road, Lower Main Car Park – we”ll have orange balloons on the van so you can find us!)

Sunday 15 April: West Auckland 10am – 5pm (Trusts Stadium, Central Park Drive, Henderson, Auckland)

View in a larger map

Cleft NZ would like to thank the following organisations for their support with the Cleft NZ Roadshow

Paragon Design

Kale Printing, Tauranga

Madhu and the team at BP Greenlane, Auckland

McDonald”s Moorhouse Avenue, Christchurch

Youthline Auckland

Christchurch City Council

Nelson City Council

Marlborough District Council

New Zealand Transport Authority (NZTA)

Wellington City Council

Destination Manawatu

Napier City Council

Great Lake Taupo District Council

Bayfair Shopping Centre

Hamilton Gardens

Counties Manukau District Health Board

Cornwall Park

Trusts Stadium

This was just one of many exciting new initiatives that Cleft New Zealand is implementing. Watch this space for more cool stuff coming your way!


Individualised Funding Seminars

Posted on Thursday, March 1st, 2012

The Parent & Family Resource Centre are running a series of Individualised Funding seminars in March at the locations/times below and attached. Booking is essential.

A presentation by Karen Smith, Ministry of Health

Hosted by Parent & Family Resource Centre

When: Thursday 1st March 7 – 9pm

Where: Nathan Homestead 70 Hill Road, Manurewa

When: Tuesday 13th March 12.30 – 2.30pm (preschoolers welcome)

Where: Disability Resource Centre 14 Erson Avenue, Royal Oak

When: Tuesday 20th March 7 – 9pm

Where: YES Disability Resource Centre 3 William Laurie Place, Albany

RSVP is essential: Phone Melissa


Who Should Attend: If you are a disabled person, parent or guardian of a disabled person, you might want more choice about how services will be delivered, when they will be delivered and who will provide your government funded support. Individualised funding helps you;

  • Employ the support staff you want in your life – people who understand your culture, priorities, preferences and lifestyle choices.
  • Set your own timetable so support staff come and go as you want, so you can build stronger relationships and enjoy a better social life.
  • Take charge of who enters your life and reclaim your priorities.
  • Source “respite” care that best benefits your family.
  • Identify new sources of support.

Cleft Charity Movie Fundraiser

Posted on Sunday, July 31st, 2011

Operation Restore Hope is an international surgical charity made up of volunteers from around the world.  Their volunteers donate their time and skills to provide surgical care for the
less fortunate children of the Philippines with cleft lip and palate deformities.  Tristan de Chalain, a Plastic Surgeon formerly with the Auckland Cleft Team, works with Operation Restore Hope & is helping to organise a charity movie fundraiser.  Details are as per the attached poster.

you’re keen to help them raise some money, see a great movie & have a fun night out the please RSVP to Lauren on 021 949 460.  Thanks for your support.

Operation Restore Hope


Cleft NZ 2011 AGM & Speaker Night – Reminder & Call for Notices/General Business

Posted on Wednesday, May 4th, 2011

 It’s now just over 2 weeks until our AGM & Speaker Night.  If you have already RSVP’d then thanks.  If not, we would love to hear if you can make or alternatively if you can’t & would like to have your apology recorded.  To confirm, details of the event are as follows :

-       Wednesday 18th May 2011 at 7.30pm

-       The Parenting Place, 300 Great South Road, Greenlane, Auckland

-       Guest Speakers – Glenn Bartlett, Maeve Morrison & Heather Keall of the Auckland Cleft Team

If you wish to put forward any Notices of Motion or General Business to be raised at the AGM then please forward these to us in writing by Tuesday 10th Ma

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y 2011.

Members putting forward Notices of Motion or General Business must be present at the AGM in order to have these tabled.  Details of motions, nominations & general business received will be sent out approximately 1 week prior to the AGM.

If you have any questions about the AGM please don’t hesitate to contact us on either or 0800 4 CLEFT ().

Kind Regards

John Frear

Cleft New Zealand Inc




2011 AGM & Info Night

Posted on Monday, April 18th, 2011

Cleft NZ invites you to an Info Night with members of the Auckland Cleft Team (Glenn Bartlett, Maeve Morrison & Heather Keall) – and our AGM

Why come?

  • Do you want to know what’s new in cleft care management ?
  • Do you want to hear about what we can learn from overseas ?
  • Do you have questions you want to ask the team that others may be interested in also ?

Then this is for you. Find out about what the Cleft Team are doing to deliver the best possible outcomes for you and your child.  

Even more re


  • Show our support for the Cleft Team and the work they do
  • Find out about Cleft NZ’s plans for the future
  • Meet the Cleft Team professionals in a laid back environment


  • Wednesday 18th May 2011 at 7.30pm
  • The Parenting Place, 300 Great South Road, Greenlane, Auckland
  • Please RSVP by Sunday 15th May 2011 to or (for catering purposes and to make sure we have enough room)

We hope to see you there.  Thanks.


Auckland Coffee Group

Posted on Friday, April 8th, 2011

Here are the details for the next Auckland Coffee Group:

When: April 20th 10am – 12pm
Where: The Parenting Place
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span style=”font-family: Arial; font-size: x-small;”>            300 Great South Road

            Greenlane, Auckland
Hope to see you there!

Thanks to MPD Group

Posted on Wednesday, March 16th, 2011
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p style=”text-align: justify;”>Cleft NZ would like to thank Mick Rose & his team at MPD Group, located in NZ & overseas, for their initiative to support us through their Movember campaign last year. 

The funds they raised for us, in excess of $6000, will be put to good use to further the objectives of Cleft NZ in order to deliver direct benefit to all those affected by cleft.

Our purpose as an organisation is “To support & empower pe

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ople on their cleft journeys”, and this includes not only people born with gambling online casinos cleft but also immediate family and friends, medical and educational professionals, peers and society as a whole.  We seek to do this through information, products, education & advocacy.

 It is through the support & efforts of people such as Mick & the staff at MPD that we can continue to pursue these goals.  We thank them once again for the support they have given, it is much appreciated.

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